The Operating System for Healthcare Self-Advocacy
Building systematic navigation infrastructure for patients with complex and invisible conditions
The Problem We’re Solving
The Withdrawal Pattern
Many women with complex or invisible conditions have quietly stepped back from active participation in their healthcare. Not because they stopped caring, but because the system stopped listening.
After years of dismissal, medical gaslighting, and unacknowledged suffering, they have chosen to opt out rather than endure more trauma. The cost is staggering: missed diagnoses, fragmented care, and worsening symptoms become the norm.
The Real Issue
The problem isn’t noncompliance or lack of motivation. It’s the absence of systematic infrastructure for patient-led care navigation.
Healthcare expects patients to advocate for themselves without providing the frameworks, tools, or strategic guidance to do it effectively. We’re filling that gap.
What We Deliver
PatientLead Health creates scalable products and systematic infrastructure for healthcare self-advocacy. We’re not building a traditional patient advocacy service. We’re building the operating system that makes patient leadership possible.
Free Navigation Tools
Six core web-based tools that help you prepare for appointments, track symptoms, communicate strategically, and review your medical records
Explore Tools →Situation-Specific Products
Scalable products for surgery prep, treatment decisions, and hospital stays. Reusable frameworks you can apply to your unique situation
View Products →Professional Services
Two specialized services for when DIY isn’t enough: ChartCheck for record review and Endo Advocate for complex reproductive health issues
See Services →How It Works
We believe healthcare navigation should be a learnable skill supported by systematic infrastructure, not an individual superpower or expensive concierge service.
Product-First Approach
We build scalable products that serve many patients rather than one-on-one services that serve a few. This makes professional-grade support accessible and affordable.
Evidence-Based Frameworks
Every tool and product is rooted in communication science, trauma-informed care principles, and real-world navigation experience. No fluff, no toxic positivity.
Progressive Complexity
Start with free tools. Move to situation-specific products when you need more structure. Access professional services for high-stakes situations. You control the progression.
Patient Leadership Model
We don’t advocate for you. We build infrastructure that helps you advocate for yourself. The goal is independence, capability, and sustainable self-leadership.
Our Mission
To build the first comprehensive operating system for healthcare self-advocacy. We create systematic infrastructure that helps patients with complex conditions prepare strategically, communicate effectively, and lead their care with confidence.
About the Founder
Carrie Schluter, BCPA
Board-Certified Patient Advocate | Founder, PatientLead HealthCarrie founded PatientLead Health after recognizing a fundamental gap in the healthcare system. Patients with complex conditions needed systematic infrastructure for self-advocacy, not just individual advocacy services.
After years providing high-touch, concierge-style patient advocacy, she realized the model didn’t scale. Only patients who could afford $200+ per hour had access to professional support. Everyone else was left to figure it out alone.
PatientLead Health represents a strategic pivot from services to products. Instead of serving one patient at a time, we’re building reusable frameworks, systematic tools, and scalable infrastructure that serves thousands. We’re creating the healthcare self-advocacy operating system that should have existed all along.
Start With Free Resources
Our tools and educational content help you build advocacy skills and confidence before investing in products or services.
Symptom Snapshot™
Generate provider-ready symptom summaries before appointments
BriefMe™
Plan and lead appointments with clear agendas and talking points
TrendTrack™
Spot patterns with visual symptom tracking over time
ChartCheck™ DIY
Review your medical records for errors, bias, and red flags
PortalPro™
Write strategic portal messages that get results
Insurance AppealBuilder™
Generate appeal letters with medical justification
Gaslighting Workbook
Identify and respond to medical dismissal patterns
Trauma-Informed Care
Navigate healthcare after medical trauma
Care Boundaries
Set and maintain healthy healthcare boundaries
Ready to Take the Lead in Your Healthcare?
No one is more invested in your health than you.