PatientLead POV
Centering the patient’s experience in healthcare
We share insights on self-advocacy, appointment leadership, and the realities of navigating complex or invisible illness. Each post offers a clear point of view, rooted in communication strategy, trauma-aware care, and the lived experiences of patients leading their own health journeys.
Transitioning from Pediatric to Adult Healthcare
“Aging Out”: Transitioning from Pediatric to Adult Healthcare At 18, you’re legally an adult, but…
Building Real Connections When Chronic Illness Is Part of Your Story
Building Real Connections When Chronic Illness Is Part of Your Story Dating with chronic illness…
Your Guide to Thoughtful Provider Transitions
Navigating the Space Between Doctors: Your Guide to Thoughtful Provider Transitions You’ve reached that uncomfortable…
Communication Strategies for Lipid Storage Disorders
Advocating With Rare Disease: Communication Strategies for Lipid Storage Disorders Living with a lipid storage…
Breaking Through Medical Bias
Breaking Through Medical Bias: Why Women Face Misdiagnosis and How to Advocate for Accurate Care…
Your Complete Guide to Requesting a Second Opinion
Your Complete Guide to Requesting a Second Opinion: Scripts, Strategy, and System Navigation Seeking a…
Reframing Chronic Consumerism
“Buy To Survive”: How Chronic Consumerism Shows Up In Chronic Illness, And Five Ways To…
How to Cancel Plans During a Flare
How to Cancel Plans During a Flare Without Shame or Over-Apology The text sits there,…
When It’s Time to Move On
When It’s Time to Move On: Keeping Your Records Intact During Provider Transitions You have…