PatientLead POV
Centering the patient’s experience in healthcare
We share insights on self-advocacy, appointment leadership, and the realities of navigating complex or invisible illness. Each post offers a clear point of view, rooted in communication strategy, trauma-aware care, and the lived experiences of patients leading their own health journeys.
Ask an Advocate: How to Avoid “Drug-Seeking” Label
Covering Doctor Changes Established Treatment Plan Question: A covering doctor refused to renew the Toradol…
Feeling Like a Stranger in Your Own Body
Feeling Like a Stranger in Your Own Body: Finding Your Voice After a Chronic Illness…
Stay On Track When Your Doctor Seems Rushed
How to Keep Your Appointment On Track When Your Doctor Seems Rushed You walk into…
The Hidden Advantage of Using Your Patient Portal Strategically
The Hidden Advantage of Using Your Patient Portal Strategically Your patient portal isn’t just a…
Listicle: Trust Your Instincts
10 Signs You Might Be Experiencing Medical Gaslighting Medical gaslighting happens when healthcare providers dismiss,…
When Your Companion Animal Is Part of Your Healing
When Your Companion Animal Is Part of Your Healing: Navigating Healthcare with Medical PTSD If…
Listicle: Symptom Simplification
7 Ways to Track Symptoms Without Getting Overwhelmed Symptom tracking is crucial for getting answers,…
Ask an Advocate: ISO Safer Treatment
Self-Advocating Through Withdrawal Question: I have EDS with severe chronic pain, and every medication I’ve…
Listicle: You Are Seen
6 Reminders for Days You Feel Invisible When your illness is invisible and your struggles…