PatientLead POV
Centering the patient’s experience in healthcare
We share insights on self-advocacy, appointment leadership, and the realities of navigating complex or invisible illness. Each post offers a clear point of view, rooted in communication strategy, trauma-aware care, and the lived experiences of patients leading their own health journeys.
Listicle: Knowledge Is Power
7 Rights Every Patient Should Know Knowledge is power in healthcare. Understanding your legal rights…
Fibromyalgia Is Real: Breaking Down the Stigma and Advancing the Science
Breaking Down the Stigma and Advancing the Science of Fibromyalgia For too long, fibromyalgia has…
Why Your Energy Crashes Might Be Mast Cell Activation, Not Just Fatigue
Why Your Energy Crashes Might Be Mast Cell Activation, Not Just Fatigue Many women living…
Hypermobile Ehlers-Danlos Syndrome: A Comprehensive Guide to Understanding and Managing hEDS
Hypermobile Ehlers-Danlos Syndrome: A Comprehensive Guide to Understanding and Managing hEDS Hypermobile Ehlers-Danlos Syndrome, usually…
Dear Doctor: I’m Not Trying to Outsmart You, I’m Just Trying to Help Myself
Dear Doctor: I’m Not Trying to Outsmart You, I’m Just Trying to Help Myself When…
Borderline Personality Disorder: Beyond the Stigma
Borderline Personality Disorder: Beyond the Stigma Imagine walking into a doctor’s office, finally ready to…
Beyond PMS: Understanding the Reality of Premenstrual Dysphoric Disorder (PMDD)
Beyond PMS: Understanding the Reality of Premenstrual Dysphoric Disorder (PMDD) “It’s not just PMS.”‘ A…
You’re Not Faking It: Why Doubting Your Illness Is Incredibly Common (and What to Do About It)
You’re Not Faking It: Why Doubting Your Illness Is Incredibly Common (and What to Do…
Medical Mystics: Why Chronically Ill People Make Great Intuitives
Medical Mystics: Why Chronically Ill People Make Great Intuitives When your body becomes your battleground,…