PatientLead POV
Building systematic infrastructure for healthcare navigation
We share insights on self-advocacy frameworks, strategic communication, and the realities of navigating complex or invisible illness. Each post offers practical perspectives rooted in evidence-based approaches, trauma-informed care principles, and the lived experiences of patients building their own healthcare leadership capabilities.
Creating Your Personal Healthcare Team
Creating Your Personal Healthcare Team: Who You Need and How to Find Them Your health is too important to navigate alone. While the traditional model of healthcare…
Gaslighting Recovery
The Gentle Art of Medical Gaslighting Recovery: Rebuilding Trust in Your Own Body When healthcare systems fail us, the journey back to self-trust begins with recognizing that…
How to Cancel Plans During a Flare
How to Cancel Plans During a Flare Without Shame or Over-Apology The text sits there, drafted and redrafted: “I’m so, so sorry, but I have to cancel…
Listicle: Accuracy Matters
5 Red Flags in Your Medical Record That Deserve a Correction Your medical record follows you everywhere. Inaccurate information can affect future care, insurance coverage, and how…
Transitioning from Pediatric to Adult Healthcare
“Aging Out”: Transitioning from Pediatric to Adult Healthcare At 18, you’re legally an adult, but your pediatric endocrinologist can’t see you anymore. The children’s hospital that’s been…
The Hidden Costs of Being Your Own Advocate
The Hidden Costs of Being Your Own Advocate: A Financial Reality Check You know the obvious costs: copays, deductibles, prescription medications. But what about the hours you…
Listicle: You’re Not Imagining It
10 Ways to Validate Your Own Health Experience When the medical system fails to validate your experience, you can learn to trust yourself. Your body’s signals matter,…
The Battle For Sleep
Six Practical Strategies for Combating Insomnia Nights of lying awake, staring at the ceiling, can feel endless. For people living with complex or invisible illnesses, sleep is…
Listicle: Symptom Simplification
7 Ways to Track Symptoms Without Getting Overwhelmed Symptom tracking is crucial for getting answers, but it shouldn’t consume your life. These strategies help you gather useful…