PatientLead POV
Building systematic infrastructure for healthcare navigation
We share insights on self-advocacy frameworks, strategic communication, and the realities of navigating complex or invisible illness. Each post offers practical perspectives rooted in evidence-based approaches, trauma-informed care principles, and the lived experiences of patients building their own healthcare leadership capabilities.
What to Do When Your Doctor Visit Goes Completely Wrong
The Appointment After: What to Do When Your Doctor Visit Goes Completely Wrong You prepared thoroughly. You brought notes, questions, and documentation. But the appointment derailed completely….
Songs That Secretly Double as Chronic Illness Anthems
Songs That Secretly Double as Chronic Illness Anthems Music has an uncanny ability to capture experiences we struggle to put into words, offering solace when language fails…
Being a ‘Difficult’ Patient Might Save Your Life
Why Being a ‘Difficult’ Patient Might Save Your Life Sometimes the squeaky wheel doesn’t just get the grease, it gets the diagnosis. The Compliant Patient Paradox Picture…
The 15-Minute Appointment Trap: Why You Leave Without Answers
The 15-Minute Appointment Trap: Why You Leave Without Answers Making the Most of 15-Minute Appointments | PatientLead Health You spent twenty minutes in the waiting room, another…
Spotting Medical Dismissal: A Field Guide
Spotting Medical Dismissal: A Field Guide A PatientLead Health GuidePost Picture this: You’re 47 seconds into describing your symptoms when your doctor’s expression shifts almost imperceptibly. The…
Ask an Advocate: How to Avoid “Drug-Seeking” Label
Covering Doctor Changes Established Treatment Plan Question: A covering doctor refused to renew the Toradol injections I’ve relied on for years and even changed my treatment plan…
Listicle: Must-Brings
9 Everyday Items That Make Appointments Easier Simple tools that transform stressful medical visits into organized, productive conversations. Pack these in your appointment bag for instant confidence….
The EDS, POTS, MCAS Triad: Understanding the Complex Web of Invisible Illness
The EDS, POTS, MCAS Triad: Understanding the Complex Web of Invisible Illness It might seem cool to be able to perform certain body contortions, but the truth…
Feeling Like a Stranger in Your Own Body
Feeling Like a Stranger in Your Own Body: Finding Your Voice After a Chronic Illness Diagnosis That moment when you catch your reflection and think, “Who is…