PatientLead POV
Building systematic infrastructure for healthcare navigation
We share insights on self-advocacy frameworks, strategic communication, and the realities of navigating complex or invisible illness. Each post offers practical perspectives rooted in evidence-based approaches, trauma-informed care principles, and the lived experiences of patients building their own healthcare leadership capabilities.
What “Patient Reports” Really Means
The Hidden Language of Medical Records: What “Patient Reports” Really Means You request your medical records and start reading through the visit notes. Scattered throughout, you see…
The Science of Rest as Repair: What Your Body Is Doing While You Rest
The Science of Rest as Repair: What Your Body Is Doing While You Rest A tech entrepreneur spends $2 million yearly on plasma transfusions, supplements, and experimental…
When Your Companion Animal Is Part of Your Healing
When Your Companion Animal Is Part of Your Healing: Navigating Healthcare with Medical PTSD If you’ve experienced medical trauma, you know how challenging it can be to…
Stay On Track When Your Doctor Seems Rushed
How to Keep Your Appointment On Track When Your Doctor Seems Rushed You walk into your appointment with a mental list of concerns, but before you know…
Communication Strategies for Lipid Storage Disorders
Advocating With Rare Disease: Communication Strategies for Lipid Storage Disorders Living with a lipid storage disorder means navigating a healthcare system where most providers have limited experience…
Ask an Advocate: Misdiagnosed?
Doctor Dismisses New Family History Information Question: I was diagnosed with MS, but I’m beginning to wonder if that’s accurate. I was adopted and recently met half-siblings,…
More Than a “Little Pinch”: Medicine Finally Admits Women’s Pain Is Real
More Than a “Little Pinch”: Medicine Finally Admits Women’s Pain Is Real A PatientLead Health GuidePost After decades of dismissal, new medical guidelines acknowledge what women have…
When Medicine Misses the Mark: A Personal Journey Through Misdiagnosis
When Medicine Misses the Mark: A Personal Journey Through Misdiagnosis The Silent Invasion The summer I turned fifteen, my body became a battlefield I didn’t recognize. What…
Ask an Advocate: How to Avoid “Drug-Seeking” Label
Covering Doctor Changes Established Treatment Plan Question: A covering doctor refused to renew the Toradol injections I’ve relied on for years and even changed my treatment plan…